I am so excited to announce that I am now starting a whole new series on my YouTube Channel reading stories for children. I have decided to call it Bryony Goes Bananas With Bedtime Stories
As some of you may know I grew up with books and they are still a massive part of my life now.
This series will be available on my defeatingdisability YouTube Channel from tomorrow!
I came up with the idea to create this as over the past few months I have spoken to children and parents about how they can make the reading experience better for their children as they need more help with reading due to their disabilities. Many Parents told me that their kids wanted to read stories just like their friends could but they found this really hard and found it embarrassing to tell friends their parents still have to read for them.
So this is when I came up with the idea to create Bryony Goes Bananas With Bedtime Stories. In each video I will be reading a Children’s storybook with pictures so that you can follow along to and we can read together. In each video their will also be main words that come up to help children to communicate and learn words.
I am so excited to be starting this and to be growing into new areas to help children discover the enjoy that books give.
The books I will be reading may also be good to watch and listen if you are learning English too as an example.
My first ever episode for this series on my YouTube Channel will be up before 6pm tomorrow. The first book to kick off this amazing series is one of my all time favourites, The Gruffalo by Julia Donaldson.
If you’ve got the book I’d love for you to read along with me.
2020 was the year of change for everyone around the world. From students doing lessons online to having meetings on zoom calls and probably spending more time in lounge wear than we thought we would. The pandemic flipped our daily routines upside down and everything we thought we knew out the window.
I would say I like to have a routine as much as possible as this helps me to manage my anxiety better. The unknown can cause me to feel a lot more anxious, have more seizures and me feel scared of doing daily activities compared to before the pandemic. I might have taken simple tasks for granted for example being able to walk around college to get to class.
I do like doing things that aren’t planned as such but if I can plan it I feel more prepared and relaxed.
As plans changed daily with new lockdown rules. I had to learn to adapt and come up with coping strategies this was hard at times. To be honest it still is now after all of us living with the unknown for quite a few more months.
However from having to take each day as it comes I have learned more about being present being in the here and now. I have also been learning to embrace the little things that bring joy to me everyday . For example having cuddles with my cats or watching a film on Netflix with the family. Maybe without this whole lockdown COVID stuff I wouldn’t have seen or appreciated the small things that make me smile and help me to be positive on a daily basis.
Another thing 2020 taught me was to try and stop worrying about things that needed to be done with a longer time frame. For example I would want to get my college work handed in way before the deadline so I could tick it off my to do list. I like to do lists as it helps me to organise my thoughts. Once everything was done I could then go and do things I enjoy like messaging friends. I sometimes didn’t listen to my body and would fight it as I wanted to carry on but I was tired. Through the pandemic I have tried to not rush doing work as slow and steady wins the race. This has really helped me with my own self care as I am now able to feel comfortable and not guilt for taking a couple of breaks and I have then been able to do better work as a result and I feel calmer with knowing my due dates for assignments.
Due to the pandemic a lot of my after college activities have been online and through social media I have been able to find new projects and groups to get involved with which I may have not found if I didn’t have more time to look for new activities to do as my routine wouldn’t of had the time available. So 2020 definitely taught me about embracing new activities, trying new things and learning new skills.
All through last year was definitely a year no one could have predicted . We definitely saw more kindness and appreciation for one another from family, to friends and from strangers.
Happy New Year! May 2021 be the year of light , adventure and kindness 💜.
Well this year has definitely been different for all of us due to COVID 19. I haven’t been doing posts on here for a while as I am finding it a bit hard at the moment with anxiety due to COVID.
However I was thinking about all the things I have done and achieved despite COVID and one things for sure I wouldn’t have done them without support from everyone around me and you guys my little online defeatingdisability family. So Thank You!
So as we are nearing the end of this year…. eeek
I thought I would share with you guys some of my top highlights from this year. So in no particular order:
This year we welcomed two new kittens to our family. Kiwi a female tabby and Otis a male black kitty cat. We got them from one of our local cat rescue centres. These two were found in a cardboard box in a car park with two others. Otis can’t stop growing and Kiwi likes to play by her own rules. Our whippet called Mango is loving having two new friends.
Earlier this year I got myself an agent for acting . The agency I am with is iNCLUSIVE Talent. They represented disabled and able bodied actors You can checkout their website here: https://www.inclusivetalent.co.uk/bryony-moss
This year I also got some coloured headshots done. I loved working with Anna she is so friendly and made me feel so comfortable. I also loved the way she uses natural light. If you are looking to get new headshots done I would highly recommend her. You can checkout her website at: https://www.annahullphotography.com
This year I started doing private horse riding lessons and I am loving them. I recently got to be apart of doing a demonstration of a lesson for the local MP Joy Morrissey.
It’s that time of year again. September has arrived which only means one thing it’s the new academic year. You might be going into a new year at school or starting college or even going to university.
Even though I am 22 now I am starting my Level 3 Course in Performing Arts this year at college. Through the years of being in education I have developed my own top tips on how I like to get ready for the new academic year and I thought what better way to share them with you by writing a blog post all about it.
Cleaning out the junk and starting fresh
1. So my first tip is to have a clean out of any old work you may still have but don’t actually need. You may have a desk you use to work and the draw is just filled with rubbish. When sorting out my draw I like to create piles of things I need to keep, things I want to keep and things I can throw out. For example you may have a maths book you’ve finished but you want to keep it because it maybe handy for maths revision if you are doing maths again. Where as you don’t need to keep pens that don’t work anymore.
2. Next I like to go onto my laptop and get rid of anything I don’t need anymore related to my education. For example you may have folders you have created and your not doing that topic anymore and you won’t find those notes useful so it can go. Helping you to clear your mind and organise yourself for work that is now the new important.
3. Another thing I like to do is change my computer background at the start of every academic year. I enjoy going onto Pinterest and finding quotes that speak to me and will help me to stay motivated. Sometimes I’ll just have one quote and other times I like to make a collage of quotes for me to see.
4. To help me get to my most important and most used websites I use for college work I create bookmarks. I then like to go through my bookmarks to see if I need to add any new ones and also to get rid of ones I don’t need to make my web searching more efficient.
5.Lastly I like to go through my college email and get rid of all my emails from the following year so that I can start a fresh.
New Year Equals Haul Time
I don’t know about you but one of the things I love about a new academic year is getting a new bag and stationary.
1. I like to go through my pencil case and chuck out any pens and pencils that don’t work anymore. This helps me a lot later when I am working and taking notes quickly in class as I know all the pens in my pencil case work.
2. I really enjoy writing in different coloured pens and colour coding my work as well as making it nice to look at when reading. If you like doing this to I recommend getting yourself a pack of gel pens. You can buy gel pens for cheap prices at shops such as The Works and on Amazon.
3. If you are struggling to find a new bag that is still really cute and pretty but not to expensive I recommend buying a bag from Primark. I used to love going to Primark to find a new school bag. If you want to spend a bit more on a bag I highly recommend checking out TK Maxx.
4. If I’m in need of a new notebook that is really cute I love to checkout notebooks from Paperchase.
Goals, Goals, Goals
Like at the beginning of the new year we like making new year resolutions. I like to create my own education goals at the beginning of every academic year. It doesn’t matter how big or small they are. I just like doing them to help me see later on in the year how far I have come.
For example your goals could be:
1. To try a new dish you can buy from the cafeteria
2. To sit next to someone in your class you don’t know/ don’t know very well
3. To organise myself more so that I am not so late to class
4. To make sure I hand in my work on the given deadline
5. Set an alarm on my phone for when I need to get up so I’m not rushing and stressing about missing the bus
Create A New Routine
So with everything that’s been going on recently our daily routines have changed massively. To help me create and get into my new routine here are some things I do that you might feel helpful
1. I like to get myself a big whiteboard and section it into seven days. I then like to write the day of the week at the top. With the place and time I need to be somewhere. I like having this whiteboard on my bedroom wall because when I wake up I can clearly see what I’ve got planned for the day.
2. I also like to get myself a new diary that I can carry in with me in my bag. I find this useful as I can write down when things like assessments need to be done by, or when a trip is or if I need to come in an extra day for rehearsals. I also like to colour code my notes so that it is easy to understand if I am running late.
3. Before I leave the house every morning it is really important that I am awake and energised for the day ahead as I am an Performing Arts Student. This means I need to have breakfast before I leave. I will be doing a quick breakfast idea blog post soon.
4. It’s really important that you create some down time for yourself. Self care is just as important as doing coursework or revising for a test. You could watch some TV when you get back home or maybe you want to tryout a face mask you brought from Boots. You could go on a short walk to help your head from spinning with all the stuff you’ve had to do that day.
I will be doing a self care ideas blog post soon. So make sure you are following me so that you don’t miss it.
I hope some of these ideas helped you. Please let me know what other things you do to help get yourself ready for the new academic year.
So this year has been a rather strange year with all of the world living with the upside down news of COVID 19. All of our lifestyle has had to change in these uncertain times with us all living with the unknown. Not being able to see our loved ones and the people we care about. To having to wear masks when doing the quick weekly grocery shop.
So I thought I would share with you some small easy ideas on how you can make someone you love and care about feel that little bit more special at the moment.
Whilst in lockdown and not being able to meet up with friends. I have enjoyed having weekly get togethers on Zoom, FaceTime and House Party. If you are missing a relative or friend remember you can always call them up for a quick chat or send them a text . During this difficult period a lot of people don’t have anyone to talk to and can feel very isolated their are charities that you can volunteer for were you get to chat to people who don’t have anyone to talk to. Having a chat to anyone can brighten up their day in more ways than you could possibly think. Here is a link to a list of charities you could get involved with to help people in your local area feel less isolated.
You could make a meal for a neighbour and leave it on their doorstep. Or you could add your neighbours grocery list to your online delivery order if they find it hard to get out and about and don’t have people around them to help. You could give donations of food to your local food bank.
Message on a Pebble
If the love doing anything crafty, you could have a go at painting messages or drawings onto pebbles and stones. You may find some from your garden or maybe you have some pebbles you can paint from a trip to a beach. You could then put them around your local park for people to find whilst they walk their dog. Little words of encouragement can go along way.
Donate to Charity
In this hard time charities need our help more than ever to help the lives of others in the community. Their are lots of charities out their that you could donate to. For example Riding for the Disabled Association, Cancer Research, Action for Children and The Theatre Shed to name a few.
I would love to know all the kind things people have done for you. And what you have done for others over this period. Please leave your comments in the comment box below.
Hannah from Luxury Blush created her very own lockdown tag. When I found out about this I was so excited. I knew I needed to take part! This tag has 11 questions and is just a bit of fun and sure to put a smile on your face.
1. Come On, Own Up…. Did You Stock Pile Anything?
I didn’t stock pile anything so it was a bit of a shock to see loads of empty shelves around. We found it very hard to find flour but now we’ve finally got some!
2. Have You Discovered A New Hobby?
One thing that I have done in lockdown is finally getting tropical fish. I now have two tanks. I have enjoyed creating the interior of the tank, finding out fish facts and of course getting them. Having fish is much more of a hobby than I originally thought from learning about plants, community fish, temperature to name a few.I now do really feel like part of the fish tank community. I don’t know if you could say this was a hobby. But during lockdown I am enjoying making and painting my own rabbit hutch.
3. Where Is The First Place You Will Go Once Restrictions Are 100% Lifted?
I can’t wait to see my friends and finally getting back into the saddle for my Saturday morning ride. I can’t wait to see the amazing horses and ponies, instructors and volunteers because boy have I missed it!
4. Lounge Wear Or Normal Clothes For A Of Isolation?
I would say most of the time I wear my normal clothes as this helps me with having a routine I feel comfortable with. Also I feel that it helps me set up my mind for the day ahead.
5. Have You Been Wearing Makeup Whilst Staying At Home?
Before lockdown I wasn’t wearing makeup everyday. However during lockdown I have enjoyed reading skin care books and trying out new looks. I have found that lockdown has given me the time to let my skin breathe helping me with my complexion.
6. How Many Zoom Quizzes Have You Done? And Importantly, Did You Enjoy Them?
I’ve done a couple of quizzes and I really enjoyed them it was really nice to be able to chat with friends and have a laugh. I’m awful at quizzes.
7. Did You Give Into The Hype And Bake Your Own Banana Bread?
This is something I haven’t done but my mum has been very busy making delicious birthday cakes and treats.
8. Were You Still Ordering Takeaways? If You Did, What Was Your First One?
I don’t really eat many takeaways even before lockdown. However I recently enjoyed stealing a little bit of my sisters Chinese takeaway meal .
9. Has Your Blog / Instagram Content Had To Change Since Lockdown?
I wouldn’t say my content has changed loads on my channels. However being in lockdown has given me lots of opportunities to write guest blog posts for other organisations. Lockdown has also shown me that when everything is 100% ok again that I would love to do more modelling shoots and post these photos on my social media platforms. I want to also work with other creatives from modelling to acting to things I don’t even know about yet!
10. Are You Waiting Until The Hairdressers Re-Open Or Have You Cut / Dyed Your Own Hair?
Right now my hair is a the length I would like however when the hairdressers re-opens I will go and probably have a small trim. Personally I can’t wait till the beauty parlour opens up again so that I can get my eyebrows threaded and waxed!
11. Who Have You Missed Seeing The Most?
This questions hard I’ve missed so many people so this answer maybe quite long. I have missed seeing and meeting up with my close friends. I have missed not going to The Theatre Shed and seeing my Shed family in person. I have missed seeing everyone and the horses and ponies at South Bucks RDA. I have missed working on the farm with friends. And finally I have missed not being able to perform on stage with college friends.
Thank you to all you amazing key workers out there and Thank You for reading. Stay Safe💜
This post is going to be a bit different compared to my pervious blog posts . I want to tell you all about Spoonie Survival Kits and about the person behind it all!
Pippa Stacey is a chronically ill writer from Yorkshire. Whilst at university she acquired a debilitating chronic illness which completely changed her life. When things started to get better she began to engage with media opportunities and speaking up about life as a student with a long term condition. In 2015 Pippa founded her very own social enterprise Spoonie Survival Kits which is now growing from strength to strength . You can checkout Pippa’s blog at https://www.lifeofpippa.co.uk/about/
The Survival Kits
When living with a chronic illness sometimes you realise just how the small things others take for granted can mean the whole world and make your day. Through this concept the ideas for these kits were made. “Spoonie” being the slang term for anyone living with a chronic illness and the kits are “little bags of happiness “. The aim is to make sure no one feels alone. The kits officially began in 2015. Kits are made to tailor for specific conditions and symptoms. 50% of all sales is donated to charity the remaining 50% is used to cover the costs of running the project. The contents of these kits are secret as they want it to be a surprise! Checkout this link to find out more about the survival kits: https://www.spooniesurvivalkits.com
Let’s Talk Kits
This kit is fantastic for anyone who needs a bit of support and comfort at night. Maybe you are feeling low? This kit also contains some gorgeous handmade items made by some of their incredible volunteers.
If you would like to buy this item please click on this link below
A big thing about this kit is with sustainability so if you know anyone who feels strongly about sustainability this would also make a great gift. This jute zip toiletry bag contains five fabulous surprises! All items are cruelty free and ethical, cosmetic items are suitable for sensitive skin
If you would like to buy this item please click on this link below
Those with chronic illness can often face unrelating pain on a daily basis otherwise known as chronic pain. These kits DO NOT cure this however these products are done to hopefully fill you with comfort and maybe a bit of distraction too!
If you would like to buy this item please click on this link below
With Spoonie being the slang word for someone who has a chronic illness these necklaces make a great gift for a loved one. Or maybe it’s a lovely little treat for yourself, to give you or a loved one a an extra bit of strength on a low day.
This necklace is handmade using quality sterling silver. The spoon is on a silver chain with a ring clasp. The necklace is on a chain that measures approximately 16 inches/ 20cm, with the spoon chain measuring 0.6 inches (15mm) .
If you would like to buy this item please click on this link below
Dear Chronic Illness features a collection of short letters collaboratively written by 16 young people addressed to their conditions. Their conditions range from POTS, Endometriosis from Tumours to Serve M.E to name a few. The letters provided a light-hearted and humours commentary on each writers experiences. Whilst at the same time aiming to give insight into the challenges of navigating life whilst living with chronic illnesses. This book compiled by founder Pippa Stacey and published by Wallace Publishing.
So with everything that’s going on at the moment I have been feeling more anxious. My routine for the week has changed and I’ve been finding that a bit challenging at times.
Recently I spoke on the phone to my care coordinator and we were discussing how I could create a new routine that I felt I could understand and build myself some structure as things are so unknown. Which can lead to me feeling like I don’t know where I’m coming or going.
I have also been working on creating a new routine I feel happy and comfortable with the help from my support worker. My support worker often reminds me that it doesn’t matter how big or small the things you are achieving are. As well as this she regularly reminds me that it’s all about the sense of achievement I get from doing something and not what others think. I am also trying not to be too judgemental on myself and be kinder to myself as I know I can be a bit to hard on myself at times.
Let’s get started
So to get started on setting out your day visually all you need is a notebook and a pen. I love to make mine colourful so you could use felt tips or gel pens. Or you could do this on a whiteboard and use a whiteboard marker and have this placed somewhere in your room so you can see it everyday when you wake up. Your day could look like this.
How to plan the day
1. First write the date at the top of the page or whiteboard.
2. Now list out the music, TV programme and exercised our want to do for the day.
MUSIC: My happy playlist on Spotify
EXERCISE: Walking the dog
TVPPROGRAMME: Sex Education
3. Next write down 3 things your grateful for, it can be anything!
4. Next you need to write down your MUST do list. This is different from your to do list as these are tasks you must do that day. For example clean the fish tank or send your friend a Happy Birthday message.
5. Now it’s time to think about how you want to feel for the day. For example I wanted to be calm, relaxed and happy on Sunday.
6. Now let’s write down 5 people your sending positivity thoughts and energy to for the day. It can be anyone!
7,. Lastly it’s time to write your to-do list. I like write down 5 things I need to do in the order of importance. Any tasks left to do that day I will add it to my To Do List for tomorrow.
I hope this helps you or gives you some ideas. I would love to know how your adjusting with everything right now. So please comment in the below!
Right now life is very strange for everyone across the world. From our daily routines changing to coping with the uncertainty and unknown. As someone who suffers from high levels of anxiety I thought I would share with you some of the things I am doing right now to help me manage my anxiety.
Social media plays a big role in modern day society . And now more than ever you might find your using your social media platforms even more because of social distancing. As you can’t go out and socialise with your group of friends. Social media can be a great tool to use in times like these. But remember if your chat starts to turn onto talking about topics you feel uncomfortable about for example Covid- 19 tell your friends that you feel uncomfortable this is nothing to be ashamed of. In fact the conversation will problem turn into story times and they won’t even realise you’ve changed topic so don’t feel guilty saying . Remember your family and friends care about you and the last thing they won’t is to make you feel uncomfortable or anxious!
Another tip I have is make sure you are following accounts on platforms such as Instagram that you find positive, inspirational and put a big smile on your face. If you are finding any accounts you follow hard to look at remember it is ok to unfollow. The last thing anyone wants is for you to have a negative impact from their account!
It’s great that we want to know more about the current situation and what’s going on around the world. However looking at the news all day can really start us to make us feel more tense and make your anxiety a lot higher . To help keep you less anxious but still know what’s going on you could restrict yourself to just turning on the news at a certain times everyday. For example 9am and 8pm . To help you do this you could turn off your news app notifications on all of your devices.
This one might seem a bit obvious but the better night sleep I have the better I feel the next day. An alarm in the morning could really help especially when we get that temptation to have a quick lie in. This could become much greater as we don’t have to get ready for the school run or work run.
Now guidelines are saying we can now go for short walk or do other type of exercise like running for about 30 minutes. I recommend just spending so time outdoors in the fresh air. This can really help to clear your mind and make sense of all of your thoughts. As well as this the fresh air can help you feel grounded in the here and now.
Right now you maybe finding it hard to go to the shops or struggling to afford ingredients. However making sure you eat everyday is very important especially breakfast it gives you energy for the day ahead. A great place I like to look for easy, affordable and health recipes is on Pinterest. Soon I will be showing you how to make some of my favourite recipes that I have found through Pinterest.
I hope some of these ideas helped you if you are experiencing anxiety at the moment. I would love to know any tips you have too. Please pop them in the comments below!