Explaining disability to children

disability

So recently I got a message on Instagram from a mother with young children. She asked me how do I explain disability to my kids? As one of her children’s class mates had a disability.

From our conversation this gave me the idea to write a blog post answering this question too.

Don’t Avoid It

My disability is invisible however if I use my wheelchair when I’m out and about I do get those sideways glances and I have had parents go in a different direction with their children so I’m out of their eye-line. The funny thing is you won’t be able to take your child in a different direction if you see a person with a disability when your out in public every time . This is because you’ve probably walked past or even engaged with someone with a disability and you didn’t even know because their disability is hidden/ invisible.

When I’m out and about in public but don’t use my wheelchair I get a totally different reaction. Less staring, parents walk past me with their children with no fuss, more people communicate with me and just treat me like a ‘normal’ person.

I know maybe thinking your avoiding a situation but in actual fact without even knowing you are creating one. As you are making non verbal judgments and statements without even knowing. For example an indirect message could be sending the statement “ don’t go near them” creating a sense of fear of the unknown.

Staring

So when I’m out and about or even when I was at school or college. I found a lot of my peers just staring at me in wonder and it was a bit awkward. At school I wore a splint and would get mean comments and looks. Teach your children it’s ok to ask a question but in a polite way. I would rather someone asked me “ why do you wear that on your leg” rather than just staring at me making me feel awkward.A lot of the time when I saw people looking I would just mention oh that’s a splint and it helps me too…

Acknowledging

I remember I was at the shops once and I heard a child say “mummy she’s in a wheelchair”. The mum looked at me and smiled and said “yes that’s a wheelchair she needs it to help her do what she wants to do”. The child said “ ok that’s cool. And they carried on shopping. Hearing the child’s response put a smile on my face and made me feel that slowly people from a young age can start to accept people with differences.

It’s Not Just About What You Say

Children are really good at not just listening to what you might be saying but also observing your body language when saying something. If you are nervous of a situation chances are the children will start to feel nervous too. But if you try and normalise it through your body language children will be able to pick up signs that everything is ok and normal and not something to be scared off.

Learn About Disability

There are so many ways now to learn about disability. Here are some examples and places you could use to help learn about disability.

Websites

Articles & Magazines

Other Sources

You can also find information about disability through reading blog, watching YouTubers and also finding pages dedicated to explaining disability on Instagram.

Honest

Children love to ask questions so if your child is interested and wants to find out more that’s fab! However what I would say is don’t make up a story to tell. If you’re not sure be honest there are so many disabilities out there. It’s impossible to know the details to everyone. As well as this two people might have the same disability written down on paper but it effects them both different ways.

Disability Is Not A Bad Word

And finally the reason I think people may not know what to say around disability is because it can be associated with “bad”, “challenging “, “difficult” or “worse suffering”.

However I know people who are disabled and their disability makes them feel proud. I can’t speak for everyone as each of us have different experiences. But for me, my disability is a part of me it doesn’t define me. Like if someone said tell me something I wouldn’t say I’m disabled as my first fact. Instead I would say I’m an actor, I love animals and I’m starting a mini zoo at home, I enjoy seeing friends and then later I’d say oh by the way I have a disability. But if someone needs to know I have a disability for a health reasons then I would tell them but day to day life you’d find out a lot of things about me before my disability would come in.

Like I said before for me my disability is part of me but doesn’t define me!

Shoes & Splints: Finding the right foot ware for your AFO

disability, fashion

If you’ve ever gone shopping for shoes that can go with your AFO comfortable then like me you probably spent hours looking in store and online for the right ones. That one pair with not only comport but has style.

I don’t wear a splint now but I did for many years in primary and secondary school. I found it so hard to find a fun and stylish shoe that worked. I ended up buying shoes from the boys section. Growing up with splints going shoe shopping was the hardest because I wanted a stylish girly shoe like all the other girls at my school. I even had people come up to me and ask at break and lunch “ Is that a boys shoe” . Boys even came up to me and said “ we’re matching why is a girl wearing guys shoes? ‘. So I was bullied for a while for having to wear a splint. I wouldn’t wear a skirt at school even when the weather was so lovely and warm because I wanted to hide my splint from others. I just didn’t want those stupid, hurtful upsetting comments said to me again and again every day. Some kids didn’t to be friends with me because I wore a splint.

So I thought I would share with you some tips and tricks to help your shoe shopping for your AFO be less hassle and you won’t spend hours/ days looking for that right pair!

What is an AFO Splint?

An AFO is an ankle and foot orthotic that is prescribed to you by a orthodontist . AFO are commonly warn by people with a disability called cerebral palsy.

A fitted AFO splint is a plastic splints which are made from a cast of your foot and leg. When getting the cast done I remember feeling like I was becoming a mummy for Halloween. Splints are made to keep feet and ankles in a good position for when you walking and standing. Depending on your situation you may have one splint on one leg or splints on both your legs. As well as this your splint may have a joint or hinge at the ankle or it may be fixed this is depending on your movement.

Types of splints

Their are many different types of splints and even hand splints. Here are a few different types available:

  • Knee Ankle Foot Orthotic- this type of splint finishes just above the ankle it is also known as a KAFO splint.
  • Hinged Splint- this type of splint allows people with more range of movement to still have support and keep at least 90 degrees.
  • Fixed Splint- this type of splint holds the ankle and foot at a particular angle most commonly at 90 degrees

Getting the shoes to fit

When going shopping and trying to find shoes that would still fit my splint but also be comfortable I would have to up about 3 shoe sizes. If I managed to squeeze my splint into shoes that weren’t a great fit this would case rubbing and became very sore and painful. Another thing with wearing by having a larger shoe to fit the width of my AFO I needed to aware I could trip even more easily when walking because of the added length. I personally had to wear a splint just on my right leg so would use an insole in the other shoe so I wouldn’t have to find shoes with different sizes for each of my foot. By having insoles in the other shoe I was able to balance better when walking.

Getting the right kind of shoes

  • As much as I hated it I would dread having to shop in the boy shoe section I found boys shoes worked with my split as they were wider and more sturdy. I remember passing the girls shoe section just wishing I could wear girly shoes.
  • I found wider shoes a lot more comfy to wear with my splint. This helped to decrease rubbing and irritation when walking.
  • I found trainer type shoe style worked best for me. I don’t know about you but we weren’t allowed to wear trainers to our school so I had to get special permission.
  • So when I went shopping for shoes I would love to look at those girly shoes with heels. Unfortunately I found shoes with a heel did not work with my splint at all so heeled shoes were out of the question as it just didn’t work.
  • I liked to find shoes if possible with a higher back to them as I felt that my splint was supported better in a shoe like this.

More Tips

  • As I only wore a splint on my right leg I found that I would have to take the insole out of my right shoe to help the AFO fit better and more be comfortable.
  • Having a splint I had to always check that the witness of the shoe was good but also remember to make sure that the shoe is not too tight on your toes. As this can cause you to walk more unevenly and you may limp and fall.
  • I did find putting my AFO in my shoe sometimes especially when your rushing for school. An OT recommended to me to use a shoe horn to help with this and it was fab!
  • I highly recommend shoes that ‘give’ as they become more comfortable each time they are worn creating good comfort throughout the day.

Where should I buy from

So when I wore an AFO I brought shoes from ASDA or Clarke’s. But recently I was talking to some friends of mine who wear splints currently and they recommend the following brands:

Nike Air Zoom Tempo NEXT% FlyEase(£169.95)

Nike flyEase- This shoe design unzip at the back to fit splints in and can require less hand function when putting them on so saving you time.

Kids’ Freshfeet™ Adaptive High Top Trainers (£15.00-£19.00)

M&S adaptive shoe range- Their collection is for school shoes and trainers. To make putting on shoes easier their shoes are designed with a zip and laces. This is done to make it easier for those who have reduced motor function or need more adjustable shoes.

Women’s Leopard Billy Gore Lows (£50.61)

Billy Footwear- These shoes unzip to completely open the shoe helping you to fit your splint into the shoe.

Finding shoes to fit with your AFO that is comfy and stylish can be hard but I hope my advice helped! Growing up I always wanted to create my own shoes that were both comfy, stylish and inclusive so you never know what the future will bring, I would also love to model for fashion brands such as Nike.

I hope to do more blog content that is all fashion for example inclusive fashion posts and petite fashion. As I know a lot of you would agree we maybe disabled but we still love fashion and want to look stylish regardless of our disability!

5 Misconceptions Disabled Women Can Face Explained

disability

There are many misconceptions and assumptions about disability in society. Some people believe that disabled people are unable to be parents and be in relationships let alone have a partner who is able bodied.

In this blog post I wanted to write about the misconceptions and assumptions disabled women can face. Disabled women may do things differently but this should not prevent us from embracing all aspects of womanhood if we want to.

Below are 5 misconceptions about disabled women that stand out to me, from my own experience and what I’ve heard and seen.

I often get surprising comments and looks when people see that I’m wearing makeup. I have gotten comments in the past which are along the lines of “ I didn’t know disabled women wear makeup”. Just because I’m disabled that doesn’t make me not want to dress up and experiment with looks. A lot of disabled women also love fashion. However for many women the clothing out in mainstream fashion houses are not accessible for us and we may need to shop else wear or make our own clothes. But this doesn’t mean we’re not into fashion in fact a lot of us love it but want the industry to be more diverse which I believe is starting to happen slowly. A big dream of mine is to model for high street clothing brands. Our differences need to be celebrated not hidden . Life would be boring if we were all the same! Disabled women should be able to feel sexy and on trend just like everyone else.

It is sometimes assumed that disabled women can’t have relationships. Dating is the chance to get to know another person, see what you have in common, maybe find love. Being disabled doesn’t stop a person from experiencing this. Sometimes disabled women who have partners others often assumed that their partner is also disabled or the women’s carer.

Disabled people are often seen as needing to dependent on others. Therefore not able to care or be in a motherly role. Their is no rule book on how a family should look. Families come in all different shapes and sizes which is filled with love.

Disabled women still need to be part of the conversation around the topic of women’s rights just as much as able bodied women. We still face the same challenges, stigmas and inequalities that mainstream women face. This is often harder to see as the disability is seen first. All women need to come together regardless of the label’s society gives us.

Their are certain disabilities that are perceived as ones women can’t have. This means these disabilities get undiagnosed, leaving some women unsupported. An example of a disability like this is Autism . Autism is more diagnosed in men than in women. Many women find it hard to get their autism recognised. The National Autistic Society says a possible reason for this is because women “ are often better at masking or camouflaging their difficulties”. However it did say that diagnosing the disability is getting better!

Down Syndrome is another disability which is more common in men than women, Source- disability scoop.

Now What?: A Guide for anyone with a new diagnosis

disability, mental health

Please note that every person may feel differently about this and their is no right or wrong way. These are just things that helped me personally. I am not a medical professional and cannot give medical advice!

Getting a new diagnosis can come with many mixed feelings and questions. It can make you feel relieved or nervous about your future. Also when your finally told you might not feel like you imagined you would feel like when getting the news. And this is totally normal and ok!

Don’t feel you need to rush back to “normal life”give yourself time to process this important news. You might need time to let you make adjustments like getting home aid equipment to help you round your home when doing tasks such as cooking.

I decided I wanted to write this so that I could share with you some tips and to tell you about the things that helped me when I was newly diagnosed.

This first step is very important to find a professional you trust and feel supported by. If you have already found a medical professional you feel you can trust this is great! Maybe the person who first diagnosed you is the right person. Or maybe you see a variety of several health care providers over the last few months or so and your trying to find out the next steps.

Sometimes when we are on the journey of being diagnosed with a condition we may see many different doctors and health care professionals. Getting referred to different doctors and having tests done. This can become very overwhelming, confusing and tiring tiring. Sometimes we can get diffrent opinions from all the medical professionals you see it can be really hard and frustrating to know who’s advice to follow and leave you feeling unsure and anxious.

My advice is :

  • Find one doctor you really feel you can trust and feel supported by. Listen to your gut. This could be a doctor you’ve seen for years or a doctor who diagnosed as an example.
  • When trying different therapies that could help you with your journeyto understand and know how to adapt to your “new normal” iris important thatthis person makes you feel comfortable so that you can ask any questions or raise any concerns you may have. As well as this it’s very important that they have an overall understanding and over view of your case.

When newly diagnosed with a conditions things may start to feel very overwhelming unlike before. You may start to feel that you are alone and no one understands you. Especially if your condition is rare. You may start to see a change in behaviour with becoming more isolated with the outside world. But know you are not alone.

Finding people who understand what your going through can be a huge help.

Not only can others offer you emotional support and help you feel less isolated they may be able to give you practical advice like coping skills. Of course when it comes to medical advice ,your doctor should be offering you advice.

Getting emotional support can be massively valuable. Dealing with a diagnosis and condition can be really diffcult and sometimes by talking to others who have the same or similar condition to you can feel like a weights been lifted as you are talking to others who know what’s it like to live with the condition first hand.

Facebook

There are so many Facebook Groups out there, some are for specific ones for diffrent medical conditions. You may find some that are local to you but don’t worry if you can’t their are others that are open to everyone and you can live anywhere. If they are well-moderated as a member of the group you will hopefully find the group a safe place where you can interact, ask questions and support each other.

However please beware that sometimes these groups can be a little too much and overwhelming. You can put the group settings on “mute” so that you don’t constantly see it but you’re still stay part of the group. Remember you can also leave a group completely. Looking after your health and well-being comes first even when your on screen.

Instagram

Instagram is also a really good platform to use when finding support. Their are so many pages/ group communities for chronic illnesses, disabilities both in general and condition specific. I follow some on my Instagram so be sure to check my Instagram @defeatingdisability to help you get started with funding pages and communities which offer support.

I’n the beginning everything will feel a bit confusing and overwhelming especially when you are working with your medical professional to find the best medication or treatments. When going to  medical appointments it is very likely your doctor will want to know how you are reacting to treatments. This may look like an easy question to answer but it isn’t really. You may have a condition that is not easy to keep on track with remembering changing information as it fluctuatios.

This is where a journal may help it helps you to not only remember important information but also allows you to store this information in one place which helps you to access all the information you need quickly. You don’t have to do it perfectly know one is going to judge its simply a space which helps you to store relevant and important information with no judgment.

Keeping track of medication, symptoms and activities may help not only helpyou but your health care professional look for any patterns that maybe recordingand being able to manage and have a plan in place if other symptoms indicateother health issues you may have. By doing journaling can help youfigure out certain patterns that you may otherwise not be able to see. For example “ if I don’t have a glass of water or tea beforedoing my day jobs I find it harder to stay calm.Or when I feel scared and anxious a get a “blood metal”taste in my mouth.

My doctors gave my mum the task of writing down my sezuires. My mum wrote down the following: the date, the time, what I was doing before the sezuire, big, medium,small, any warning before and any other comments .Medical Professionals wanted us to do this to see if they could see a pattern and maybe be able to see what was causing my seizures. At college they now keep a record of my seizures which they get from my 1:1 support worker as she writes my seizures down.

On reflection journaling this information also helped me to understand my new condition more which is now really helpful because with support now I can still try and do every day things like my peers but my support worker and parents also make sure I’m safe. Alternatively if you find writing in a journal is not your thing their are apps you can use tostore this information which is brilliant when your on the go as you just get your phone out and store the relevant information quickly.

Now it’s time to think about what would help you?. Everybody is diffrent. While some things are helpful to one person this doesn’t mean it helpful to everyone. When it comes to health everyone’s journey is different and that is ok. Each one of us is individual and so is our health. You could use your journal to keep a record of things you felt were helpful. From this you could create an “action plan” with your professional and support team around you.

You have just been recently diagnosed so it is really important you focus on your well-being and mental health. You may now start to feel under a lot of pressure from the outside world to get better quickly. Know that it is ok to ask for help. If you struggle with this question ask yourself what would I say if someone I cared about asked me for help.

Through my own experiences I have found out who the realfriends in my life are. I found that my relationships with true friends grew to be stronger as well as showing me that not all relationships I had were as solid as I thought. Though this hurt at times I now have astrong supportive bubble that is growing as our relationships are growing stronger and stronger every day.

I’m not going to lie to you being newly diagnosed with a condition can be challenging. You may feel that your feeling up and down thousands of times in a day. With thoughts and emotions rushing constantly the fears you have. But know this it’s ok to take time out. You are loved, You are valuable, Your journey will make you stronger and help others feel less alone.

5 things I want non-disabled people to know

disability

Recently I was having a chat with someone and they were surprised by how I spoke and portrayed myself as they were expecting me to be and act different because I have a disability. So I thought I’d share with you 5 things I want non-disabled people to know from myself as a disabled person.

This post is not meant to cause offence, it is simply done to share my thoughts. I know my thoughts, feelings and options do not relate to everyone in the disabled community. It’s important to remember that no one is the same regardless of if they have a disability or not.

I hope this post is informative and raises awareness of some misconceptions that can be surrounded by disability.

As a disabled person their have been times were I felt that the world was just not made for people with disabilities. Therefore I often face barriers in our everyday life that my peers don’t. This can make me feel excluded in certain aspects of society. It’s important to remember that making adjustments for disabled people is vital and can make a huge difference. These adjustments don’t always have to be “big” it can simply be needing extra time to get off a ride at the theme park.

There are many misconceptions surrounding the subject of disability. One of them being that having a disability can have a negative impact on someone’s life. Don’t get me wrong their have been times when I wished I wasn’t disabled and that I wished I was like everyone else. Maybe I wouldn’t have got extremely badly bullied. However having a disability has helped me think outside the box when problem solving. I wouldn’t have met some of the amazing people and animals I have in my life if I wasn’t disabled I can’t imagine a world without the charities Riding for the Disabled and The Theatre Shed. Also my disability has lead me to opportunities that I believe I would have if I wasn’t disabled for example starting this blog.

People sometimes tell me “ you don’t look disabled” and I know they mean it as a compliment but it doesn’t always come across like that. Sometimes it makes me have thoughts like “ what did you expect me to look like?”. My disability looks invisible so I also get people telling me that I’m “your so lucky your disability is invisible”. However having a disability that is invisible can be hard as people think your stupid and slow but that’s a blog post in its self so I’ll write about it in more depth in a future post.

We may not always share it but disabled people and their family and careers are usually fighting some sort of battle weather it’s to do with education, funding, transport or employment to name a few. We may need adaptations to help us but these don’t take away the barriers we face. Adaptations help us to carry out everyday tasks like everyone else. Funding for people to help us like support workers is also vital as this allows us to be more independent but still safe as we don’t always want to do activities with our parents supporting us 24/7. We want to grow and feel like our peers but with the extra support we may need from someone who is not related to us instead.

Just because someone is disabled that doesn’t mean that they don’t want to be happy, achieve things. having goals and ambitions. We may need to do things slightly differently , it might take a bit longer and we may need a bit more support along the way to do what we want to do. But that doesn’t mean we can’t, we will get where we want to be. If you can dream it you can achieve it!

Medical Appointments And The Anxiety

mental health

Feeling The Feelings And The Mind Rushing

Medical appointments and anxiety have come hand in hand for me since I can remember before appointments I feel really anxious, worried and sick. I’ve had a lot of medical appointments in my life some to do with my disability and others to do with my mental health. Throw in the pandemic and having to wear a mask and then see others with face masks is something I find really scary. I’m not the best with needles either.

Growing up I noticed I would have more hospital appointments than my peers. I’d have to leave school early for appointments. I still do now even as a college student. At school I than began to realise I needed aids like a splint on my leg whereas my peers didn’t have these. I would often have to explain to other kids what it was and why I wear one.

Even know I still explain to peers what my conditions are. When I was first put on medication for my mental health it was in liquid form. However this then changed to tablet form. I found this really scary thoughts would rush around my head.

What if I can’t swallow it?

What if it gets stuck?

Will it make me sick?

Now I find taking tablets ok most of the time but I still get these questions running through my mind. I don’t think I’ll ever get used to incorporating medical appointments into my life as they still cause me stress in different ways but in a way it feels like a routine I just have to go with.

The past year however I have had my medical appointments on the phone and not in person due to the pandemic except for when I had my first vaccine for COVID. After my jab I had to lie down as the felt dizzy. Me and needles aren’t the best of friends.

As someone with anxiety I found doing appointments by phone call were actually better yes I still felt a bit anxious for the phone to ring. But I didn’t have to go through sitting in a waiting room waiting for my name to be called with about a million things going through my mind preparing myself into knowing I had to talk about things I’d rather not think about. I think it helped having appointments on the phone as I was in my safe place and I could do something straightway after my appointment like watch Netflix on the TV.

Breathe

When I start to feel anxious before the appointment and in the waiting room my mum who takes me can see that I’m nervous. Sometimes I say that “ I can’t do it because my stomach is all in knots and I want it to be over before I even have to go”. This is when my mum will help me to do deep breathing and we do it together, I find doing it with someone else is very helpful as I feel not alone and that I’m not stupid for feeling this way and that’s completely normal and valid to feel how I feel.

Reading Emotions

One of the things I have to do now every week is a COVID test at college. I find these very worrying and scary to do and this can trigger my seizures. I think part of why I find it worrying is that you can’t read another persons face very well as the mask is preventing you from seeing things like a smile. The pandemic has made me realise how much as humans we gather information from each other just through facial expressions. I didn’t realise that a smile one small movement on your face could mean so much. That simple gesture conveys kindness and reassurance and a touch of empathy to another person. When seeing a needle is coming towards me and and I’m preparing for the sharp scratch it can be odd not to see a smile from the nurse or doctor who’s doing it not give that smile of reassurance that everything will be ok.

Doing Something Nice Afterwards

Before lockdown after appointments something my mum and I would do is to try and calm down my anxiety levels. By doing something completely different like going around looking at what yummy things we could buy in the supermarkets in the streets. It gave me a chance to clear my head and to breathe. Sometimes just taking a break feels like the right thing to do. As I feel if we just drove back home I may not want to have some chill time and end up doing more coursework or whatever I need to do.

Due to lockdown this way of helping myself calm down is not possible however we do different things for example before a phone call appointment we will organise something I want to do after the call for example taking my dog Mango on a walk or sitting down to watch a TV program. It’s all about doing the self care you can do at home from baking to having your favourite ice cream to making sure if you pamper yourself with a face mask and bubble bath.

If you feel anxious before appointments tell someone you trust, you don’t have to go through it alone!

Diversity in the Equestrian World

life, Riding for the Disabled Association

As some of you may know it is International Day for the Elimination of Racial Discrimination . This inspired me to write this blog about diversity in the equestrian world.

When I tell people I enjoy going horse riding some are very surprised not just by the fact I ride and have a disability but also because of the colour of my skin. People sometimes tell me “ I didn’t realise people of your ethnicity took part in this sport”.

They get even more confused when they see me with my family. I am Indian but at 3 months old I was adopted by a English couple who lived in India. They then had a biological daughter so people get confused when I say “and this is my younger sister”. Over the years I’ve had people stare at me when I’m out with my family in public. Sometimes I forget that I’m a different ethnicity from my family to me it’s my normal!

The equestrian world is really lacking in diversity . I think a big aspect of why this is the cause is because of how low the awareness in this sport. People in the past have said and made comments that they thought this sport is not a sport for some like me which really isn’t the case.

We need more role models in the sport. We need someone who is relatable to people. If people see someone from the same background or similar they feel they can relate to that person. To help show how this sport isn’t just for one type of person we need to change perceptions.

I believe Riding for the Disabled challenges perceptions constantly because when I talk to people about the fact I ride with the RDA many people haven’t actually heard of this amazing charity. So I love telling them how special, valuable and life changing it is!

When people see someone like me. They can see that I can ride. I want to help encourage others to give this sport a try despite society’s labels and their are others like me taking part in the sport. This helps to break down the barriers this sport has.

One person breaking down these barriers now is Reece McCook, founder of online campaign Ride Out Racism.

Everyone should feel that it is possible for them to join and achieve great things in this sport. We need to inspire each other to join and participate in this sport and in our community. You never know who could be the top riders of our future let’s break down these barriers together, this sport is for everyone!

All About Spoonie Survival Kits

disability

This post is going to be a bit different compared to my pervious blog posts . I want to tell you all about Spoonie Survival Kits and about the person behind it all!

The Founder

Pippa Stacey is a chronically ill writer from Yorkshire. Whilst at university she acquired a debilitating chronic illness which completely changed her life. When things started to get better she began to engage with media opportunities and speaking up about life as a student with a long term condition. In 2015 Pippa founded her very own social enterprise Spoonie Survival Kits which is now growing from strength to strength . You can checkout Pippa’s blog at https://www.lifeofpippa.co.uk/about/

The Survival Kits

When living with a chronic illness sometimes you realise just how the small things others take for granted can mean the whole world and make your day. Through this concept the ideas for these kits were made. “Spoonie” being the slang term for anyone living with a chronic illness and the kits are “little bags of happiness “. The aim is to make sure no one feels alone. The kits officially began in 2015. Kits are made to tailor for specific conditions and symptoms. 50% of all sales is donated to charity the remaining 50% is used to cover the costs of running the project. The contents of these kits are secret as they want it to be a surprise! Checkout this link to find out more about the survival kits: https://www.spooniesurvivalkits.com

Let’s Talk Kits

The Insomnia Spoonie Kit
£12.99

This kit is fantastic for anyone who needs a bit of support and comfort at night. Maybe you are feeling low? This kit also contains some gorgeous handmade items made by some of their incredible volunteers.

If you would like to buy this item please click on this link below

https://www.etsy.com/listing/659498940/insomnia-spoonie-survival-kit?utm_source=ssketsyshop&utm_medium=api&utm_campaign=api

Sustainable Self Care Kit
£17.99

A big thing about this kit is with sustainability so if you know anyone who feels strongly about sustainability this would also make a great gift. This jute zip toiletry bag contains five fabulous surprises! All items are cruelty free and ethical, cosmetic items are suitable for sensitive skin

If you would like to buy this item please click on this link below

https://www.etsy.com/listing/765161418/sustainable-self-care-kit?utm_source=ssketsyshop&utm_medium=api&utm_campaign=api

Chronic Pain Spoonie Survival Kit
£17.99

Those with chronic illness can often face unrelating pain on a daily basis otherwise known as chronic pain. These kits DO NOT cure this however these products are done to hopefully fill you with comfort and maybe a bit of distraction too!

If you would like to buy this item please click on this link below

https://www.etsy.com/listing/551523212/chronic-pain-spoonie-survival-kit?utm_source=ssketsyshop&utm_medium=api&utm_campaign=api

Chronic Fatigue Spoonie Survival Kit
£14.99

Sometimes self care can feel extremely hard, exhausting and challenging . So this kit is filled with items which aim to help you get through those heavy days as comfortable as possible!

If you would like to buy this item please click on this link below

https://www.etsy.com/listing/565321545/chronic-fatigue-spoonie-survival-kit?utm_source=ssketsyshop&utm_medium=api&utm_campaign=api

Accessories

Sterling Silver Spoonie Necklace
£14.99

With Spoonie being the slang word for someone who has a chronic illness these necklaces make a great gift for a loved one. Or maybe it’s a lovely little treat for yourself, to give you or a loved one a an extra bit of strength on a low day.

This necklace is handmade using quality sterling silver. The spoon is on a silver chain with a ring clasp. The necklace is on a chain that measures approximately 16 inches/ 20cm, with the spoon chain measuring 0.6 inches (15mm) .

If you would like to buy this item please click on this link below

https://www.etsy.com/listing/611870335/sterling-silver-spoonie-necklace?utm_source=ssketsyshop&utm_medium=api&utm_campaign=api

The Book

Dear Chronic Illness features a collection of short letters collaboratively written by 16 young people addressed to their conditions. Their conditions range from POTS, Endometriosis from Tumours to Serve M.E to name a few. The letters provided a light-hearted and humours commentary on each writers experiences. Whilst at the same time aiming to give insight into the challenges of navigating life whilst living with chronic illnesses. This book compiled by founder Pippa Stacey and published by Wallace Publishing.

To find out more about this amazing book and where to buy it please visit: https://www.spooniesurvivalkits.com/2018/04/26/dear-chronic-illness-our-very-own-book-release/

Lastly if you would like to get involved with Spoonie Survival Kits please visit their get involved page at https://www.spooniesurvivalkits.com/get-involved/

Riding for the Disabled Association: Helping To Train Duke

Riding for the Disabled Association

Recently at the stables we have had a new resident join our RDA family. A very lovely and friendly pony called Duke. I have been helping to train him in some of my riding lessons.

At the moment when the weathers not too hot and we are not going for hacks around the woods enjoying the sunshine and keeping cool. I am doing a lot of work with him going round corners and doing things like circles as he loves to lean onto my helper and ask for hugs and kisses all the time.

When riding Duke I notice I tend to go over to the left side more so we’ve been working a lot on straightness. This has really helped me to stay in the middle of the saddle and I find he responds better to me when walking straight compared to when we do work in the school involving doing circles or going in and out of cones.

I have found that if I do some pole work with him trying to make sure he is straight and not drifting this can really help him to make sure he picks up his legs and doesn’t trip or lose his balance as much. He finds balancing quite hard but we’re working on it.

What’s really lovely about him is that he always wants to try his best and wants to learn.

Due to the hot weather recently I have not been doing work with him in the school but going out for hacks in the woods instead. Going out in the woods I have found has really helped him to stay more straight and not drift so much. This has helped me a lot with keeping in the middle and not sitting to one side. As well as this when we go on hacks sometimes the horses and ponies might see something they are not used to like a ladder. So when gong out I have been able to show Duke things he might not have seen before whilst giving me lots of positive reinsurance .

I have found helping to train Duke very interesting as I also helped to train Billy when he first joined. It’s interesting how even though Duke is slightly older than Billy I need to work with him more on tasks Billy found more easy in the beginning when he first joined such as not drifting towards the helper or staying on the track.

I really enjoy riding Duke he’s so gentle and friendly and I can’t wait to see all the amazing things he will achieve in the years to come!

Disability Representation In Children’s TV

disability

Growing up I remember watching lots of different Children’s TV programs but very few of these programs featured a character with a disability. The only program I really remember watching as a child that featured a disabled character was The Story Of Tracey Beaker. However I only started watching The Story Of Tracey Beaker when I was old so what about before then?

I was diagnosed with my disability when I was in year 2 of primary school. My teacher at the time noticed I was having difficulties compared to my classmates and that’s when the many hospitals appointments started. I remember at the time I didn’t really know what was going on all I knew was that I had to spend days off school to go to the hospital some where near and some felt very far away.

I remember the doctors and my parents explaining to me that I had a disability and that I had some brain damage that my other friends didn’t have but everyone is unique and life would be boring if we were all the same. During this time I did start to tell my friends at playtime that my brain was a bit different to theirs as I got used to saying I had a disability that’s when things started to change. Friends drifted away and started to make fun of me not wanting me to be with them. This was hard for me as I didn’t understand why because to me I hadn’t changed. I was still the same old me.

I remember coming home from school sitting on the sofa watching TV and I couldn’t see what was wrong with me just that I was different but I didn’t understand why I was treated differently. As I grew up I understood more and more what a disability was, how it made me different and how others saw me but to me I was still the same.

I remember watching TV programs and thinking I was strange as I couldn’t see anyone else like me but to me I was normal. As I got older I understood more and more about my condition and why others treated me differently but when watching the TV sometimes I felt strange as I couldn’t see a person in the programs quite like me. Until I was older and started watching The Story Of Tracey Beaker which had disabled characters in.

Not seeing characters with disabilities in things I watched when I was younger now looking back really affected me. I think it made me feel that I was strange a freak as I couldn’t identify myself with anyone from my favourite programs but my friends and other classmates could. It made me feel that whatever I did I wouldn’t fit in and when your a child all you want to do is be able to fit in with everyone else; to feel accepted and liked by others.

This is why I think it is brilliant that the very popular pre-school show Peppa Pig will have the permanent feature of Mandy Mouse starting in 2020.

I believe that it is very important to have disabled characters in TV shows for children who are very young like preschool years. I think that having characters like these introduced on Children’s TV is important as it helps to show young children that everyone is different and that we are not all the same. I also think that having more disabled characters on Children’s TV will massively help young disabled children feel less alone and it may help them to understand more about what having a disability is like and the types of things they may face. I also believe that if we show characters like these on Children’s TV from a young age then children may not feel like they need or should pick on or bully others that outside society’s norm. As well as this I believe it sends the message to children from a young age that someone might be disabled but disabled people can still do things and you might have more in common with them than you think!

To find out more about Peppa Pigs Character: http://www.pretty52.com/entertaining/tv-and-film-peppa-pigs-new-friend-has-parents-choking-up-heres-why-20190404?fbclid=IwAR2wyYjjQ3ZaCObilbJhQRFnBvDR6WW11ru_bvc2q9SyAl8YPl5Cd_pjHWo